Better care for people with rare diseases
Rare diseases pose a major challenge for the healthcare system, as their diversity and low prevalence make it difficult to build up sufficient knowledge regarding diagnosis and treatment. Sweden is now working to establish a national quality registry to collect information on all rare diseases. The aim is to ensure more equitable healthcare. In Sweden, over half a million people live with a rare c
https://www.medicine.lu.se/article/better-care-people-rare-diseases - 2026-06-24
