Improving care for rare diseases
Rare diseases present a substantial challenge for healthcare systems, as their high clinical heterogeneity and low prevalence complicate the accumulation of knowledge regarding diagnosis and treatment. Sweden is now implementing RaraSwed, the Swedish national rare disease quality registry, to facilitate the extraction of homogenous data and promote healthcare equity. In Sweden, more than 500,000 i
https://www.medicine.lu.se/article/improving-care-rare-diseases - 2026-08-13
